Living Life : Kaley's First Trip to Houston and Plane Ride

We made it to Houston, around Houston and back. We even had some fun, and lots of good food along the way! We were very lucky to have some wonderful accommodations from Kelli and James. We went to Hermann Park rode the train and Kaley played in the park followed by eating lunch at a cafe which Kaley decided Ketchup was good enough to eat all by itself. We even got some pool time in :) while Kelli and James napped, I think they were a little overwhelmed with a 1year old wondering/destroying their apartment! We also met with the pediatric neurosurgeon he was in agreement with the MRI yes it is a lipomyelomeningocele and her cord is tethered which is what is causing the syrnix to get bigger, the short version is the spinal fluid is being restricted and is unable to flow up adequately therefore the more the lipoma grows the less fluid can flow freely therefore the syrnix also gets bigger. So the plan is by removing the lipoma the rest will resolve. We scheduled her surgery for October 24. We will have to be down there two days prior for labs and to meet with a pediatric plastic surgeon (who will be closing the incision) and will plan to be there for 3-5 days after surgery. While this plan is very overwhelming, I do feel very relieved to finally have it set. I have to say the staff at Texas Children's Hospital is amazing and we had a very good visit overall. Thank you to everyone for the positive thoughts and prayers. We could continue to use them over the next few months!

Riding the train around Hermann Park